My monthly breast cancer support group met this week. I don’t always go, but I went this week so
that I could see one of my nurses, and give her a Christmas gift. The meeting was surprisingly
crowded. A good way into the hour, the
door opened to the small conference room, and a woman entered, face covered
with a mask, two hats on. As she peeled off her layers, she appeared drawn, haggard, and stressed. She asked if this was the meeting where she
would learn to make herself look beautiful again, in a jesting voice. My nurse got up and greeted her, “It’s so
good to see you. I’m glad that you are
here.”
The woman sat down and burst into tears, wracked with fear, pain
and despair. She told us that her treatment was just killing her. She could not eat, had lost a lot of weight,
and she felt so terrible all the time. She
could not sleep and found herself awake, night after night at 2:30 AM, “the
witching hour,” as she called it, pondering all of the frightful what-ifs –
what if I go through all of this, and the treatment doesn’t work, what if the
side effects of the medications harm me, what if I can’t eat what I want to eat
again, what if, what if, what if? All of it was so overwhelming, and she did
not know what to do.
Another woman spoke more of the gift of gratitude, that even when
we feel our worst, there is always some small thing to hold onto and that the
important thing is to try to find it, even if it is as simple as watching a
favorite holiday show. Still another
suggested that she ask more questions about her diet and treatment and to speak
to her doctors about how she was struggling.
As I sat and listened to what the others were saying, I watched the
woman’s face. Her forehead started to
unfurrow. Her breathing became more
regular, and for a moment, she appeared a bit calmer. Then, the tears began to trickle again from
her eyes, and she said that she just could not handle all of it.
Lucky me, now it was my turn to share something. Crap. Think,
Chris, think. From the back of my brain,
the title of one of my favorite books, Bird
by Bird, by Anne Lamott, my favorite writer, gave me an idea. If you haven’t read this book, you
should. I'm reading it again. (The book is about writing, by
the way.) The title of the book comes
from a story that Lamott relates about her older brother, who at 10 years old,
had to write a report about birds. Of
course, her brother left the project until the day before it was due. (Whose kids do this? Surely, not mine, except actually . . . all
the time.) Lamott’s brother was
overwhelmed by the enormity of the task and did not know how he going to do
it. Then, his dad sat down with him and
said, “Bird by bird, buddy. Just take it
bird by bird.”
And isn’t that the truth? Do we need to solve the mysteries of the
universe all at once? Do we need to
totally figure out how we are going to handle the path of a disease, over which
have no control? No. We. Don’t.
So, I offered to the woman that she try to be more gracious to herself and
accept that didn’t need to deal with it all
of it. All she had to do was handle
what was in front of her right now, in this moment. She replied that she didn’t think she could
do that. I responded, “You did. You made it here.” Then, my nurse chimed in, “And, you made a
funny joke when you arrived.” Nodding her head, the woman
wiped her eyes and said, “Thank you. Thank you.” The woman turned to my nurse and asked her to
help come up with a list of questions for her doctors.
The meeting started to wrap up, as people had to move on with their
days. I gave my nurse her present; it was
a bead bracelet because she loves her beads, with a charm inscribed with the
word, “Hope.” “Because that’s what you
give us,” I said and then headed out.
As I drove home, my thoughts turned to the meaning of hope. Desmond Tutu once said, “Hope is being able to
see that there is light despite all of the darkness.” But, what are we supposed to do when we can’t
see the light? We can wail at the
darkness and stay up night after night fixating on the worst. We can withdraw from our friends and family. Or, we can find the damn matches and use them
because we are supposed to be living as “children of the light.”
It’s all over our spiritual traditions,
for the love of all that is good, and I don’t think that’s an accident. We light candles to celebrate the Hindu
festival of Diwali to signify the victory of light over darkness, good over
evil, and hope over despair. In the
season of Advent, we wait for Emmanuel, God with Us, the Light of the World. To celebrate Hanukkah, we light the Menorah
and rejoice in the miracle of light. We give praise to Allah, the light
upon light. We do sun salutations in the
practice of yoga. It’s all there right
in front of us, if we open our eyes.
After this karma-has-kicked-my-ass year, I have come to believe
that we need to light the light in each other.
It’s not that hard. It can take
any form -- a kind word, advice from our own experience at a support group, a
nod that we get it, a text, a note, a call, or an invitation to have coffee or
to sit together at lunch -- what-fucking-ever it takes to make the path
brighter. One single match dispels the darkness, you know.
So, this is my prayer as we enter the last week of Advent and as this
long year comes to close, that, please God, we become a candle for each other.
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