Thursday, April 9, 2020

Thoughts on Maundy Thursday

Dear ones, Tonight we celebrate the second night of Passover, and may it be a blessed one to all who celebrate, and Christians celebrate the Mass of the Lord’s Supper, Holy Thursday, or Maundy Thursday services. This a particularly holy night for many faiths, but I can only speak to my own.

On this night, Jesus celebrated the Passover with his disciples, said the prayers, and recounted the Exodus from Egypt. He remained faithful to Mosaic Law, all the while knowing he was the new Passover, the Paschal lamb to be slaughtered. He gave us the Eucharist, his eternal memory and presence. But, I also learned a new thing today—thank you Kate Bowler—about the meaning of Maundy. The derivation of Maundy comes from the Latin, mandamus, or commandment. During Holy or Maundy Thursday, Jesus washed the disciples’ feet, much to their protestations, particularly by Peter, whom I find to be the most human disciple because he insisted that his faith would never be shaken, though it was. But Jesus didn’t stop there, he went on to wash the feet of Judas, his betrayer, as well. Despite the disciples’ protests, Jesus answers, “I have given you a model to follow, so that what I have done for you, you should also do.”—This, a commandment to serve.
Amazon.com : Maundy Thursday Bulletin -"Wash One Another's Feet ...
At the end of Holy Thursday services, the Eucharist is removed from the church and placed in repose to allow individuals to spend time in prayer, as Jesus spent his last hours in the Garden of Gethsemane. He asked, probably begged even, his disciples to stay awake with him because He was grieving. He knew He was about to die. He prayed that the cup be passed from Him, but in the end, he offered Himself, “yet not as I will, but as you will.”

And, his disciples? They couldn’t handle it. They couldn’t stay awake. When the mobs finally came and Judas gave Jesus over, the disciples ran away. And Peter, being Peter, denied that he knew Jesus three times over the course of the night. When dawn arrived and the cock crowed, Peter wept bitterly.

In these strange days in which we find ourselves, many are following the mandamus to serve, whether as frontline healthcare providers, first responders, teachers working remotely, essential workers, parents and caregivers who are taking over the role of educators, those who are shopping for the elderly, raising funds for PPE for our healthcare workers, providing meals, sewing masks, and even staying at home.

But many, like the disciples, can’t handle these days. Maybe, they’ve lost their jobs and are afraid for themselves and their families—worried how they will pay the mortgage, the rent, the bills, or put food on the table. Maybe, they don’t have reliable Internet connections or even a computer, smartphone, or iPad so that their children can do their schoolwork. Perhaps, they don’t feel “resilient” or unable to “pivot” at this moment. Maybe, they don’t feel particularly grateful right now. They’re not being “productive.” I wrote a little about this earlier today so I apologize if you’ve read this already. But, I think it bears repeating.

I’ve heard this phrase, “When this is over and we get back to ‘normal’ life” said far too often, not with respect to the COVID-19 pandemic, but to any number of life’s tragedies. Oh my dear ones, here’s what I learned from having cancer (twice), we’re not going back to normal. This event (like many others we’ve experienced) will indelibly mark a before and after in all our lives, in our children's lives. We cannot even imagine at this point how much our world will change. What I also learned from cancer is that I needed to grieve, really grieve all that I (and my family) had lost. I was angry, sad, and outraged. I had to go through all of it and burn my former life to ashes.

Once I did, I was ready to create a new life for myself. I could rise like the proverbial Phoenix. This is not the same as “getting back to normal” nor is it “a new normal.” It’s a long painful process, a descent into death, if you will. So, if you don’t feel joyous or #blessed right now, it’s okay. You don’t have to be someone else's “inspiration.” You don’t have to be strong. You don’t have to be positive. You can sit and be with whatever you feel now.

In the end, Jesus forgave his disciples for falling asleep. He forgave Peter who denied him, not once, but three times. We’re allowed to be perfectly imperfect, most especially when we’re weak.

Wednesday, December 20, 2017

My Kids will be Sick for Christmas -- A Parody


My kids will be sick for Christmas,
Of this, I will guarantee.
Off I go, with different kids in tow, to the pediatrician twice this week,
Their strep tests came back negative, so no antibiotics for me.

My kids will be sick for Christmas,
Of this, I will guarantee.
My home sounds like a tuberculosis ward,
My kids, they cough in their sleep.
It's viral, they say.
It needs to run its course -- it'll take a few days.
So, treat it symptomatically.

My kids will be sick for Christmas,
Of this, I will guarantee.
There might be snow,
And noses to blow,
With tissues piled by the tree.

My kids will be sick for Christmas,
Of this, I will guarantee.
The holiday is only a few days away,
And they are home with me.

Perhaps, they'll be better by Christmas,
If only in my dreams.











Tuesday, December 5, 2017

The Elf: An Apology

It’s the first full week of December, and the Elf anxiety has struck according to Facebook. I will be the first to admit that I bought into the Elf. We named our Elf - Jingle. (I didn’t score any points for originality with that. So move on, people.) When Jingle first arrived, I believed, truly, “This is great! I’ve got this nailed.”
Not so much.
I sucked at the Elf. 
I forgot to move the damn thing. It would sit for days on the dining room chandelier, dust would settle on its little rosy cheeks. Sometimes, it would list precariously. Then, someone would say something, and while someone else was brushing his teeth, the Elf would magically fly somewhere else in the house. It would sit there on the windowsill of the family room or bookshelf. Again. For. Days. But, my little guy didn’t seem to mind. I have clear memories of him talking to the Elf, whispering into its little ear about whatever magical message he wanted to send back to the North Pole. So, I gave him that, at least.
Isn’t that, really, what we are trying to do in our sublimely imperfect ways during these weeks? We are, or at least I am, trying to create or re-create the magic of Christmas for my children, out of the shimmering webs of the past. I grew up pretty average middle class on Staten Island. My parents did not have a lot. My dad was a human resources executive and spent more than one holiday holed up in a hotel room in Manhattan negotiating some labor agreement or another for New York hospitals, racing against a strike deadline. My mom was a nurse and worked nights, and we butted heads furiously and often. 
One of the things, though, that my mom loved and did exceptionally well was Christmas. Memory's gossamer filaments return to me at this time of year – how my mom decorated our little apartment (and, later, our little house) with fresh greens and holly and the scent of pine when I came home from school; the cookie bake-a-thon we would have every year and the cinnamon and sugar on the butcher block; the nativity that was carefully arranged on the bookshelf; and the candle she left burning (okay, maybe not the safest, but I didn’t use seatbelts as a kid, either) in the window on Christmas Eve to let any traveler know that there was room in our home; and the music – Vince Guaraldi to Bing Crosby to Nat King Cole.
I have tried to echo these moments in my own home today. I have a gorgeous holiday candle I light every night. (Hat tip, Erica Amato.) I have a bake-a-thon with the kids and everyone gets to choose a favorite to bake. I fill my pots with greens. I put our crèche front and center on our mantle. I play the music I loved hearing as a kid. We do other stuff too, like going to the sing on Christmas Eve and watching Christmas Vacation and Elf and the Polar Express over and over.
And it all matters. I realized this the other day, when I found the Christmas music station on the radio, and James, 12, complained about it. And, Thomas, 16, took him to task. Later, Tom said to me, “James needs to learn. That music is Christmas to me because that’s the music you always played when I was little.”
“Tom, that was the music that my mom played when I was little.”
“Yeah, well, it’s Christmas. James will figure it out.”
In this darkest month, we go searching for the light --  the light of the menorah, the light of the star, the light of a mother’s faith. And, who would have ever guessed that, through all of our short-comings, our did I really do that flaws, our too rushed-to-judgment, Just get in the car!” “I don’t know where your shoes are!” “Hello, yes, I will drop off your clarinet.” “I don’t have time for this!” “You need what for tomorrow?” moments, we would find perfection, forgiveness, and redemption in a child?
One day, in the not too distant future, our children will be standing or sitting or lying on the floor hyperventilating about the lists and the errands, while we, God willing, are sitting with our feet up somewhere with a view, cocktail (or cup of tea) in hand, and memorys web will spin for them. They will remember the thing -- that special, magical thing -- and they'll get it. But not the Elf, hopefully, they are smarter than that shit.
So, relax.
Light a candle.
Bake some cookies.
Fry some latkes.
Make those spring rolls and dumplings, Athena Lee, for when Chris comes home.
Mold their memories.
These are fleeting moments when they believe.
If all else fails, pick up some wine.
Maybe, move the Elf. Or not.

And, jingle all the way.

Sunday, October 1, 2017

This is not Pink


Welcome to October! And, we all know what that means. That’s right, it’s time for pink, for the grandmother of all “awareness” campaigns, it’s breast cancer “awareness” month. As an aside, October is also liver cancer awareness month, but I guarantee that we won’t see any emerald green ribbons wrapped around trees or on lapels.
For the next month, the world will be festooned in pink ribbons, a veritable tidal wave of pink will send those gold (childhood cancer) and teal (ovarian cancer) ribbons from last month spiraling to the depths of the awareness ocean. Did you see a yellow or teal ribbon on a box of cereal in September? No. Well, then, it’s time to ask why. I am sure that when I head to Shop-Rite next week, I will see plenty of pink merchandise. There will be “awareness days” at baseball and football games; there will be golf events for a “cure” and plenty of races or walks for a “cure.” Here’s the thing, though.
There is no cure for breast cancer or any cancer, for that matter.
I’ll let that sink in for a moment.
There. Is. No. Cure.
Ribbons and “awareness” don’t change that fact.
Is cancer treatable? Absolutely. Many people are treated successfully, go into remission, and continue to live their lives.  Am I one of them? I’d like to think so. I’ve had cancer. Twice. I had Hodgkin’s lymphoma, diagnosed when I was 14 in 1981. So, I was a member of the childhood cancer club, long before the gold ribbon thing. I was diagnosed with breast cancer last year when I was 49. It was caught early during my annual mammo and ultrasound. My treatment was successful. And yet, and yet, I don’t pretend for one single moment that this can’t change. It’s insidious, cancer. 
One in three breast cancer patients has metastatic or Stage IV disease. That means that the cancer has spread from the breast to someplace else. It can happen any time; it can be an initial diagnosis or can be diagnosed months or years after completing treatment. It can happen even if the original breast cancer was caught “early.” No one knows why this happens. Almost no one survives metastatic disease. If you know someone who has died from cancer, that person died from metastatic disease. Yet, notwithstanding that one-third of all breast cancer patients will be diagnosed with metastatic disease; according to Metavivor, only 2 to 5% of all money for breast cancer research is dedicated to metastatic disease.
This year, if you want to make a difference in the fight against cancer, please consider supporting organizations that actually are putting dollars to work to find a cure or that are providing direct support to cancer patients. Ask the important questions: Where does the money go? Who does the money help? Use Charity Navigator to verify a charity’s accountability. Here are some ideas:
·      Metavivor: www.metavivor.org
·       Living Beyond Breast Cancer: www.lbbc.org/
·      Young Survival Coalition: www.youngsurvival.org
·      Pink Warrior Angels: www.pinkwarriorangels.org
·      Remember Betty Foundation: www.rememberbetty.com
If you know someone who was recently diagnosed or is in treatment, and you want to help, but are not sure how or what to do, may I suggest offering specific support, such as an offer to come to treatment, go for a walk or go out for coffee; to help with grocery shopping or laundry following surgery; and, of course, meals always are appreciated (as long as you clear taste preferences which can go wonky during treatment), as are cards or notes. I saved every single one that I received. They still make me smile.
If you want to splurge, then consider these great companies and organizations, all started and run by survivors:
·      AnaOno Intimates: A lingerie and loungewear company designing exclusively for those who've had breast reconstruction, breast surgery, mastectomy or are living with other conditions that cause pain or discomfort, www.anaono.com.
·      Survivor Moda: The ParkPuff™ Seatbelt Pillow for Breast Cancer Survivors, www.survivormoda.com.
·      Diva for a Day: Nominate someone to be a “Diva” and she'll have a beautiful, restorative day, www.divaforaday.org.
·      Fighting Pretty: “Pretty Packages” are care packages intended to empower women battling cancer to feel strong, beautiful and fierce, www.fightingpretty.org.
Cancer happens. Cancer sucks. Cancer kills -- too many, too young, too soon. 
We need to come together to make a difference. 
We need to move beyond the ribbons.
We need a cure.
Our lives are depending on it.
In Memory Of --
Nan A., Breast Cancer
Patrice B., Pancreatic Cancer
Ted B., Liver Cancer
Bob C., Prostate Cancer
Champagne Joy, Breast Cancer
Lorraine M., Breast Cancer
Peter M., Brain Cancer
Jim O., Throat Cancer
Thomas W., Pancreatic Cancer
In Support & Honor Of --
Erica A., Breast Cancer
Mark B., Prostate Cancer
Lorry B., Breast Cancer
Steph B., Breast Cancer
Karen B., Breast Cancer
Liz B., Breast Cancer
Chiara D., Breast Cancer
Lauren D., Breast Cancer
Dana D., Breast Cancer
Gina D., Breast Cancer
Peggy G., Lymphoma
Karen G., Breast Cancer
Dana H., Breast & Ovarian Cancer
Maureen J., Breast Cancer
Tom K., Melanoma
Mary K., Breast Cancer
Nancy L., Breast Cancer
Melanie L., Breast Cancer
Shea L., Lymphoma
Lori M., Lymphoma
Peggy M., Breast Cancer
Brendan M., Hodgkin's Lymphoma
Laura M., Breast Cancer
Diane M., Breast & Lung Cancer
Susie M., Breast Cancer 
Nora M., Ovarian Cancer
Mike M., Bladder Cancer
Christie O., Breast Cancer
Rachel P., Breast Cancer
Maria R., Breast Cancer
Cassandra S., Breast Cancer
Jen S., Lymphoma
Joanne W., Breast Cancer
Karen W., Breast Cancer